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Read Liberals and Disability Rights, Part 1
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Liberals and disability rights, Part 2
By
Mary Johnson
"It wasn't just one person carrying me up the stairs. It would
take one person behind me and one person in front, and many times
another person telling the person behind me when to step up."
Tennessee court reporter Beverly Jones is a plaintiff in the suit
which the Supreme Court heard on January 13. She, George Lane and four
others sued their state under the Americans with Disabilities Act
because they couldn't get into their courthouse -- unless they were
carried.
"Year after year," Jones said, "the same situation
would occur." She simply got tired, she said, of being on
"public display." The Supreme Court Five seemed singularly
unimpressed with her attorney's argument, that the inability to get
into a courthouse without asking to be carried involved
"fundamental rights of citizenship." What was wrong with
having to be carried up the steps, Chief Justice Rehnquist asked. That
didn't mean a person was being denied anything, he said.
The whole debate irritated Justice Antonin Scalia: "It depends on
what's meant by discrimination," he insisted. Being "turned
away because there is no elevator is not a constitutional violation.
"An inaccessible voting place means nothing at all," he went
on. "It merely means the state didn't go out of its way to
accommodate the handicapped." States "may not have made it
easy for handicaps [sic] to vote," he went on, but that was no
reason for Congress to subject states to lawsuits. Nor was it a
constitutional violation to deny public education to disabled
children, he added in an aside.
As outraged as liberals may be by the states' rights mantra of the
current Court, we might privately agree with Scalia and Rehnquist that
the denials of justice disabled people say they face are not on a par
with the real denials of equal rights African Americans faced. We may
concede that disabled people's lives are difficult, says leftist Marta
Russell, author of Beyond Ramps: Disability at the End of the Social
Contract, but many of us don't believe "disability is an
oppression that belongs on a theoretical par with race, gender or
class." We "don't see basic underlying institutional
relations at work when it comes to disablement."
Progressives have marched for civil rights, women's rights. We've
taken up gay, lesbian and transgender issues. We speak out to oppose
the death penalty. We publicly denounce rollbacks in environmental
protections. But disability rights remains on the fringes of our
consciousness. We are "oddly reluctant to see disability rights
as part of a program of egalitarian civil rights," says Michael
Bérubé, author of the 1996 bestseller Life As We Know it, about
raising his disabled son Jamie. He says it's "weird" that
liberals "see disability as a simple question of deficiency
rather than stigma, and thus somehow different from race and
gender."
Perhaps the disability rights movement is still too small, says
Russell. Leftists who have disabilities do not force their ideological
peers to take on the issues. Or perhaps we believe that disability
rights are laudable but cost more than society can afford; that they
provide treatment. to a tiny group at the expense of the rest of us.
These arguments were made by right-wing interests throughout the 90s
and have formed most of what has passed for public discussion about
disability rights. The majority on the Supreme Court seem to believe
them.
Our wrists hurt from typing on flat keyboards; we put the TV on
"mute" when it gets too noisy in the bar, so we can follow
the action by reading the captions; we slip into the "handicap
stall" at the airport because it's big enough to accommodate us
and our rollbag and computer bag safely. Yet we don't protest against
the conventional wisdom that says the disabled cause problems by
wanting "special treatment' at work for repetitive stress
injuries; or by suing for accessible public restrooms, or by pressing
for more television captioning.
Perhaps we're in denial, suggests Bérubé, for sooner or later,
it's likely either we, or someone in our family, will find ourselves
thought of as "disabled" in some situation or another. We
will encounter stigma. We'll be excluded, shut out by a barrier that
is illegal under disability rights law but exists because the law's
never enforced.
Sooner or later, we will likely need some accommodation. Whether the
accommodation is considered something "special" "for
the handicapped" or something entirely normal depends mostly on
whether society considers the item something for everyone -- like
electric garage-door openers -- or "for the handicapped" --
like a house with a ramp.
Rehnquist walks around the courtroom during oral arguments because his
bad back hurts, but he does not see this as an accommodation he is
able to make to his disability because he is, after all, a Chief
Justice. He does not consider that someone with a bad back who can't
sit at a desk all day without pain might have a right as well to an
accommodation-such as a different chair.
"Though we are conditioned to think otherwise, human beings do
not really exist in two sharply distinct groups of 'people with
disabilities' and 'people without disabilities,'" said a 1985
U.S. Commission on Civil Rights report, Accommodating the Spectrum of
Individual Abilities. Disability is "a natural part of the human
condition resulting from that spectrum -- and will touch most of us at
one time or another in our lives." That report paved the way to
the creation of the Americans with Disabilities Act. The law was
intended to present a set of new ideas for people -- that equality
means, in fact, that sometimes people have to be treated differently,
given different accommodations, in order to achieve equal rights. The
real goal of the disability rights movement in the U.S. is to provide
equal opportunities for all Americans -- not to identify individuals
who are entitled to some kind of special treatment.
But we are conditioned to think in terms of "us," normal
folks, and "them" the disabled. We are taught that what
needs to be done for "the disabled" is to help them get
themselves "fixed" -- through medical intervention, or, if
they can't be cured, then to help them adjust, as Ruth O'Brien points
out in her book Crippled Justice. This medical-model view prevents the
disability rights vision from taking hold. And as long as people do
not understand the disability rights vision, they do not try very hard
to understand the morality of access and accommodation, either.
No large grocery or hotel chain, no home-and-garden supply center
would consider designing an entrance without automatic doors. They are
standard in hotels and discount stores. Not, of course, for the people
who literally can not open doors by themselves-such people are
"the disabled"-them, not us. Hotel, grocery and building
supply store operators fight regulations that require they accommodate
"the disabled." Automatic doors that go in without complains
are meant for us, the fit, the nondisabled, to ensure that we will
continue to shop at the grocery or building supply center; to make it
easy for us to get our grocery carts out, our lumber dollies to our
truck loaded with Sheetrock for the weekend project. So the bellhops
can get the luggage in and out of the hotel easily. When an
accommodation is for "them," it is resisted; when it is for
"us," however, it is seen as a design improvement.
Is it better for society to carve off "them," labeling
people as "disabled" -- in order to certify them for special
benefits or to tell them they are not able to work in our factories,
as the Supreme Court Justices seem to want to do -- or better to see
them as, simply, part of us? To take the latter view requires that we
go beyond the liberal directives of merely including the "less
fortunate" in our society, for that is the charity model.
The disability rights model takes a different direction, offering a
way of ensuring that we ourselves will remain included in our
families, our neighborhoods, our communities, when we become one of
those "less fortunate" persons by acquiring ALS, having a
stroke or bearing a child with a disability.
We should view disability rights in the same way we view the push for
environmental regulation in order to protect our biosphere, our plants
and animals, and our own ecological futures. Disability rights is more
akin to environmental rights than anything else.We fight logging in
the Amazon rain forest not just to preserve the diversity there, but
to stabilize the world climate for all of us. We fight for people in
nursing homes to have the option of living in the community, because
winning that battle will insure that we too will have that option when
we need it.
Disability rights issues could redefine the women's movement, says
feminist Ingrid Tischer. "The battles are huge. They include
access to affordable healthcare, long-term community-based care and
living wages for the workers (a largely female population) who provide
personal assistance." Winning these battles would help both
disabled people and women.
And Michael Bérubé says, "I'm frankly surprised that more
liberals don't latch onto the idea of 'reasonable accommodation' as
the standard for all civil rights law." The Americans with
Disabilities Act revived "disparate impact" theory, he
points out (lawsuits over employment practices that have a disparate
impact on women or minorities -- and thus, said plaintiffs, violated
the Civil Rights Act -- had been losing in the Berger and Rehnquist
Courts). But the ADA goes even further: it "requires
employers to make 'reasonable accommodation' for all employees, thus
giving them a bargaining power that they would not otherwise have in
an 'at will' employment system -- and indeed more bargaining power
even than many unionized employees have. It is the only civil rights
law that imposes positive obligations on employers."
Liberals "have lost so much ground and so much public legitimacy
over the past 30 years that it's quite clear we need new ways of
thinking about the public sector and the common good," he
continues. He suggests "putting the perspectives of people
with disabilities front and center in a second wave of civil rights
activism."
It's a kind of personal investment strategy: we press for the
disability rights vision to be realized in our communities, in order
to ensure that the components of an accessible society --
accommodation, personal in-home assistance, houses we can get in and
out of easily, public buildings with automatic doors and no steps,
usable websites, captioned television programs -- are there not
merely for "the disabled" but for us when we come to need
them. As does protecting the natural environment, creating an
accessible society helps all of us in the long run, erasing the
us-vs.-them zero-sum mentality that has propped up the case against
disability rights.
Posted March 15, 2004.
Mary Johnson edits Ragged Edge. Read her book, Make Them
Go Away: Clint Eastwood, Christopher Reeve and The Case Against
Disability Rights.
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